Hiring a coach to get started on the mold sabbatical. Sara Riley Mattson, the author of Camp Like a Girl, was the role model who made me believe I could take my life back.
Finding mentors and allies in person and limiting my time on Facebook groups after I noticed how terrified I was each time I did online research.
Moving in stages to places that were a little cleaner each time.
Ending up in a wilderness area, sleeping outside in a hammock for a year.
Taking glutathione to get toxins out of my tissues and then taking binders to get them out of my body, even when no new exposures. (Don’t stop the binders!)
Taking extreme measures to maintain extreme cleanliness of bedding, like
Washing the hammock and all contents every other day by hand
NOT using public washing machines
Only washing and hanging bedding on line while freshly showered
Only making my bed while wearing clean pajamas
Hanging bedding on clothesline at most pristine area on my land
Using Downy free and gentle in both wash and rinse
Keeping pajamas and bedding separate from all other laundry, even when dirty
Scrubbing thermarest every other day with soap and scrub brush, sun dry
Maintaining at least 2 complete sets of bedding, clean at all times (2 hammocks + 2 thermarests+ 2 sets of blankets)
Wearing pajamas only once before washing (maintaining 3 sets)
Replacing all bedding and PJs about every 4 months
Having Plans A, B, C and even D for sleeping. I have gone all the way to F once.
That means always having clean back-up bedding and a back-up to your back-up.
I use Kavinace Ultra PM (a neurotransmitter sleep aid) and get a 12 hour night’s sleep once a week. I rotate about 6 sleep remedies. (Chinese herbs, Western herbs, Ambien, Zyflammend, Kavinace Ultra PM and Melatonin.) If I am really clean, I don’t need any.
I find that if I get a good night’s sleep, I can tolerate contamination during the day better and can relax a little about keeping daytime areas as clean. (Like my car.)
I support my adrenals with 2 protocols (Dr Lam products) and it lowers my reactivity and helps stabilize sleep and hormones.
I try one new remedy each month, drop one, and keep the ones that work.
I have simplified supplement/medication routine where I take everything in the am and pm. Therefore I don’t take VIP one spray 4x a day, I take it 2 sprays 2x a day. If it doesn’t fit into my routine, I don’t do it.
I keep all my clean clothing in a box and clean bedding in another 2 boxes. I don’t leave clean things open to the air if I can help it. It protects them from surprise contaminations and makes decon easier.
I have an ongoing maintenance Anti-MARCONS protocol (colloidal silver+Xclear and EDTA spray) so that VIP continues to work well. It’s working.
I soak in hot springs regularly. It helps detoxification, gets me cleaner before bed and relaxes my nervous system. It also allows me to socialize because the other people are clean. Find Hot Springs near you.
I go to town as infrequently as possible and plan meals accordingly.
I aim to eat an anti-inflammatory, low-histamine diet. But I have treats too, so I don’t hate my life.
I don’t stay on my computer very long, as it makes me inflamed.
I am aware that a sense of safety and routine even in a non-ideal environment is better (by far) than complete upheaval and fear in a cleaner environment.
I don’t just meditate, I reject the “inflammatory” thoughts that arise, whenever they arise. I refuse them. I listen to the retreats by Eckhart Tolle on Audible.com when I wake up during the night and let his wisdom saturate me. I have become aware that my suffering is from my thinking and that I can choose to be present as awareness instead.
I experience sensations in my body and don’t attach “story” to them. I watch my fear and it always dissipates.
I don’t take this experience personally.
I rejoice in and enjoy the “good spells” but I won’t let myself get attached to them. They always end, but that’s OK because I don’t expect them to last.
I don’t force a feeling of gratitude, but it spontaneously arises for very ordinary things. (like a hot cup of tea, a good night’s sleep on my cot, a walk.)
Chronic Inflammatory Response Syndrome, CIRS, is also known as “Biotoxin Illness” or “Mold Illness.” It is a relatively new illness that is emerging from the toxic response of some microorganisms to our modern, chemical-filled environment. Patients will often get a preliminary diagnosis of ME/CFS (Myalgic Encephalomylitis/Chronic Fatigue Syndrome) or CFIDS (Chronic Fatigue Immuno Deficiency Syndrome.) It is a harrowing illness to have financially, socially, psychologically and physically, but people can, and do, recover.